Tag Archives: psoriaticarthritis

Another Rest

Well I’ve had another rest from blogging, and other stuff, as I’m sure y’all that follow me have noticed.

I never know when I will feel good and when I will feel awful due to this chronic pain I live with. Let’s just say that I’ve had more down days than up lately for a number of reasons. I pray to be on the track to feeling good for more than a couple days at a time now. I just never know what each day holds for me until I begin it.

I have found myself cancelling things and saying no more than ever, even when I really want to. I apologize more than ever because I just can’t!! I hate the hold this autoimmune disease has over me. It isn’t just one thing. I have a number of things that taunt me daily.

So many say there “well just do this” or “have you tried…” and “I know that feeling” when really they don’t have a clue! I don’t even try to explain anymore I just say “thanks for that advice” or “I’ll try that” just to move the conversation on from even talking about it any further. Most days I just want to scream but even that’s to exhausting. 😂

Any-who, enough about that!!

Pray for me and my husband! Say a special prayer for those not even in my life these days, whether they’ve chosen to walk away or I’ve just distanced myself from them, to love me through it anyway.

Good night world! May God hold your hand through the hard times just as He does for me because without God, I probably wouldn’t even be here. 💕

Broken and Beautiful

Kelly Clarkson sings a song called “Broken and Beautiful” and it is so relatable for me because I feel so broken, most days, these days BUT GOD and loved ones y’all; right!?!

Broken and Beautiful (YouTube screen shot)

I live with lots of chronic pain in my entire body, due to a few medical issues, that causes me to live with so much pain around the clock. Some days it’s “hide-ably” tolerable and some days it hurts to just wake up! Lots of days, I just wanna sleep and not wake up until the pain hurts no more.

So many Dr’s!!!!! So many surgeries!!!!! So many “Let’s Try This!” So many “Lets Run This Test.” So many “Xrays and blood work!” So many unknowns but let’s keep seeking for answers until I am so sick of it all!!!!!😫

My most recent surgery, just 5 weeks ago, was for them to put in a nerve stimulator implant in my back. For those that don’t know what that is, it’s a machine that’s basically an internal Tens Unit that blocks the nerve signals that go to my brain telling my brain that I feel pain. While it has helped, it’s not as helpful as we’d hoped. I would say it’s helped by maybe 30% when it’s turned on.

As I type this, it’s 2:20 A M and I can’t sleep. And since I’m awake, I feel the aches and burns going on through out my entire body. In my shoulders, arms and hands I feel aches, throbs, burns, down to my finger bones hurting so bad at times that I just shake them off and hang them down to my sides for a few seconds of that momentary cold sensational relief. Some times I just wanna take em off and set em aside for a bit, swap em out with another pair, massage them momentarily, just something for some kind of relief! This is not what the stimulator is for, that’s for my feet, legs, lower back, and hip pain (which didn’t help my left hip much at all). To be fair though, I rarely mention my shoulders, hands, and arm pains at all because there’s so much other crap that hurts way worse.

I don’t know how to explain it, all I can say is I just HURT ALL OVER and I don’t know why. I don’t know how to explain it. I don’t want sympathy. I don’t want more freaking medicine. I don’t want another dang surgery. I rarely even want to be touched but I don’t want to be rude. I don’t want to seem mean to any one. I don’t want to hurt anyones feelings. I don’t want to hurt anymore PERIOD! So, to avoid things in this paragraph, I stay home a lot more.

So much of this unexplainable pain just makes me so danged irritable at times. I have gotten to where I just avoid being around people and certain situations all together. I rarely get out and about by myself anymore because I never know from moment to moment what I’m going to be able to tolerate because the pain changes from day to day through out each and every single day. Simply put; I just hurt and I don’t want it to become an excuse for any thing in my life but it’s very debilitating at times. Thankfully though the migraines have almost completely stopped since my neck surgery was done in December of last year. So that’s a positive praise! Thank you Jesus!

I just simply have “unexplainable chronic pain” that’s un-relatable to anyone and everyone around me therefore it’s hard for you to understand. Just know that some days are good days for me and some days are bad but more often than not I just “fake the smiles” to make it through the day with as little complaining as possible because I don’t want to be a burdensome person to anyone. However, I do love deeply and I want y’all to know that I truly appreciate ALL of the prayers and support from you all! I feel ya 🤟♥️

To those of you that do show me true genuine love and support (not just when ya want something) through all of the “maybe this’ll help” processes that I continue to go through to find relief, I love you from the depth of my being and I apologize for not being able to physically help any of you but I do pray that I’m there for you, as you are for me, to the best of my abilities because without God and y’all I don’t know how I’d cope with this life.

So thanks for just being your true selves y’all 😊 #ILYMTTYBLTT❤️

Frustrating Day

My morning started off pretty good. My husband and I got up and prepared to head out for the hour and a half trip to see my Rheumatologist but we were quickly halted when my husband found that our water heater had been leaking. Thankfully he seen it before we had a complete mess on our hands. The drain pan was almost to the rim full of water. It would not have made it another week until he got back so, after a few calls, he got in touch with a plumber that could replace it TODAY! WooHoo, thank ya Lord! So we gather what info we need from the old one in order to buy a new one.

We finish getting ready to go and head out.

Next stop, Dr office.

That appointment was also a frustrating ordeal. First my husband wasn’t allowed to even go inside with me, due to this covid19 crap, then the lab tech chased a vein in my right arm for a good five minutes before deciding to try my left arm for a good vein. Of course she got it the first stick only for something goofy to happen and her wind up having to chase that vein too for some reason. BUT she was finally able to get her three tubes of blood from that arm so that’s good. The tech was very nice and apologetic during it all, which I greatly appreciated, so that was helpful in keeping my frustration at a minimal. I even told her it was fine, no need to apologize because it just happens that way some times and she appreciated my understanding.

Next stop is Lowe’s for our brand new water heater. So thankful that we had the means necessary in order to purchase a new one but this too took longer than expected. The gentleman that helped us was very nice and LOVED to chit chat. After finally getting what we needed the nice gentleman even helped my husband get it outside and into the back of our pick up.

So, off we go for our journey back home because the plumber we were able to get in touch with will have his “hands” to meet us there. Once the two gentlemen got the tank drained and outside, they began the install of the new one. BUT, you guessed it, they have some unexpected issues with the install and it is now going to take way longer than expected to complete the job.

Thankfully, once they are complete and outta here, all is well once again.

UNTIL it isn’t.

As I began to clean up the mess, not a big one, left behind from the job that has taken several hours to complete, I find that the new water heater is now leaking. I call the plumber and after a few “discussions” on a few different calls, we both agree that it’ll be fine to wait til morning for them to come back and see what’s happening now.

So my husband is back where he needs to be for work and I am off to bed to begin my morning in the morning, once more, with the water heater situation.

Moral of this story you may ask……..I just felt like sharing part of my very frustrating day with y’all and also to share that SATAN DID NOT WIN TODAY!!

I’m now off to lay my frustrations down at the feet of Jesus and have a great night of peaceful rest in spite of my frustrating day.

Hopefully y’all can do the same and have a good night!

Young Living

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Rough Day

Another rough day of pain. Ugh!! So over this flare up.

My BFF sent me this picture and it is so true! She truly gets me and there are no words to explain how much I appreciate and love her.

Speaks for itself

After day 4 (today) of this particular flare up and struggling to even get something accomplished (read My Office post), I’m so exhausted! My body is so tired and not like a normal “oh I’m tired”, it’s like an “I’m so tired I can’t see straight nor walk right kinda tired”. I feel like every bone and muscle I have is aching and burning and my skin tingles when someone just touches me. My head feels I can feel every single strand of hair and they hurt. I hate so many things about myself, especially my body, these days. But God right!?! If I didn’t have God to lean on and carry me on the days I can’t carry my own weight around, I honestly don’t know what I’d do with myself. Also, I am so thankful for my husband y’all! He does everything he can to help me. He tries so hard to ease my pain but nothing truly helps. It just has to run its course.

It’s so hard to explain so that others can have some kind of understanding of my misery. No one sees my “behind closed doors” struggles, I make sure of that. The two people I can’t hide from are God and my husband, they see it all, and they help me more than any others could. I rely on them for everything. Thank you Lord for your strength and mercy. Thank you David for loving me through it all.

As I type this, I realize that I really am very blessed! Way to blessed to stress over all of this pain. It’s nothing compared to what Jesus went through. Thank you Lord God for giving us Your Son on that cross to take our sins and fill us with The Holy Spirit once we give our life over to You. Thank you for helping me live in this pain every single day. I look so forward to my life in Heaven with You Lord.

Good night y’all. May God bless each and every one of you as He has me.